Self-determined living
for people with

rare diseases:

parasolis

Patient organisations, self-help groups,
individuals

Projects and research
to improve their
quality of life

Current focus:
Ectodermal Dysplasia
(ED)

The parasolis foundation was established in 2025 as a non-profit foundation based in Uitikon (Canton of Zurich). Its mission is to improve the lives of people affected by rare diseases through commitment and financial resources. Starting with Ectodermal Dysplasia, we plan to gradually expand our activities to include other rare diseases.

We are aimed at people affected by rare diseases and offer support in the following areas:

Foundation

The Parasolis Foundation was established in 2025 as a non-profit foundation based in Uitikon (Canton of Zurich). Its mission is to improve the lives of people affected by rare diseases through commitment and financial resources. Starting with Ectodermal Dysplasia, we plan to gradually expand our activities to include other rare diseases.

We are aimed at people affected by rare diseases and offer support in the following areas:

Patient organisations, self-help groups,
individuals

Projects and Research
for improvement
their quality of life

Current focus:
Ectodermal Dysplasia
(ED)

Foundation goals

Autonomy and

freedom of choice

parasolis is committed to a self-determined everyday life for those affected by rare diseases, characterized by autonomy and freedom of choice.

Empowering self-help

parasolis strengthens and supports the work of patient organisations and self-help groups for rare diseases.

Full access to

medical service

parasolis promotes full access to medical services for all those affected by rare diseases and strengthens the position of those affected in the medical process.

Inclusion –

no Stigmatization

parasolis aims to strengthen the social standing of those affected by rare diseases through inclusion, destigmatization, and the fight against taboos.

Purpose of the foundation

(Excerpt from the statutes)

The parasolis foundation pursues the following objectives:

Financial and advisory support for patient organisations that, in the broadest sense, engage in activities supporting people affected by rare diseases.
Counseling for people affected by rare diseases and their relatives.
Financial support for individuals affected by rare diseases and their relatives in justified individual cases.
Funding for organisations and projects of any kind that aim to directly or indirectly promote the well-being of people affected by rare diseases.

Support is provided exclusively to non-profit institutions and individuals in need. Supported organisations, individuals, and projects must guarantee that the funds received from parasolis will be used efficiently, economically, and with maximum impact in accordance with the foundation's purpose.

The parasolis foundation pursues its objectives in Switzerland and abroad. It is a non-profit organisation and does not pursue any commercial purposes.